Developing a research strategy in partnership with communities affected by pediatric onset chronic illnesses

We are committed to improving the lives of children with chronic illness and their families by creating a health delivery system that addresses their unique needs. Patients and families have partnered with care providers and researchers to generate a specific research question and protocol design that addresses research priorities that matter most to their health and wellbeing. These research questions will allow us to conduct patient-centered research that improves the long-term health and wellness of children growing up with these conditions.

Past Research Projects

Initial Retreat

Focus Groups

Patient & FAMILY research PRIORITIES

Current Research Projects

Research Workshops