Patient & Family Advisory Council (PFAC)
Many children with chronic illness carry their diseases with them to adulthood and their needs may go beyond standard “medical” services, to include extras like nutrition and social work. We know that patients and families want to know how to prepare, and what can be done now, during childhood, to improve health and wellness over a lifetime. At UCSF Benioff Children’s Hospital, it is our goal to build a Child and Adolescent Chronic Illness Center that will be focused on these children and their family’s needs. We will provide innovative care across diverse diseases; address medical, developmental, psychosocial, and patient educational concerns; and work with adult care providers to guarantee smooth transitions from pediatric to adult care.
The UCSF Child & Adolescent Chronic Illness Center Patient and Family Advisory Council’s goals are:
- To promote a culture of patient and family centered care
- To provide an avenue for the patient and family voice to be heard
- To assist in the design of the physical space, wellness services, and patient facing materials